16 days old
Our babies are stable but still sick little girls. The sick part in the sense that their lungs are still not mature and they continue to need much assistance from the ventilators. Feisty babies are wonderful but their feistiness also causes problems. They both attempt to breathe on their own and this works against the job of the ventilators. Reagan likes to pull on her ventilator tube and appears to be frustrated that its in her throat. Eden likes to pull on her feeding tube. All of this feistiness makes Mom and Dad nervous, we would hate to see or hear that either of them pulled out these important tubes.
Eden has had a tough couple of days with needing more oxygen and blood pressure medication. She also has an increase in an inflammatory marker in her system which could indicate an infection. She is on antibiotics and has stopped her feedings for today which is frustrating because she was doing so well with them. Hopefully she will be re-started on feedings tomorrow.
Their feedings have increased dramatically since Saturday and they both appear to really like breast milk!! Yeah, this makes us feel so good that we made the right decision. And it also makes me feel comforted to know that I am helping them in this way.
Scott and I need to remember to have patience during this process, our heart aches for them to get better quicker than what is happening but we have to realize that this is a process and it will take time. Please pray for us to be at peace and to find patience everyday and for our little girls to continue to get better. Thank you so much for all your prayers!!
Oh Amanda...my heart breaks for you and your husband. I'm so glad the babies seem to be doing so good. It must be so hard to see them all hooked up to everything..i can't imagine. I pray everyday for your little ones :)
ReplyDeleteHello my name is Angie, I am Jenny Morris' sister-in-law. My youngest son was born at 33.5 weeks at Abbott. He was at Childrens NICU and then transferred up to 7th floor back at Abbott. I know exactly what you are going through. Reading your past entries has brought back all kinds of memories - good and bad. The nurses and Dr's there are absolutely amazing! (Dr Ney was my Peri for a while too) It may seem impossible now but the girls will learn everything they need to. Stay Strong and know that you are doing everything you can for them right now. I know first-hand the unbelievable feeling you get when you are told that you can finally take them home!
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