2 months, 2 weeks, 5 days
Gestational Age: 39 weeks, 5 days
Today was the toughest day thus far, our hearts are aching with how difficult it has been. Eden was having trouble breathing all day, she was almost exclusively needing 100% oxygen when her MD decided that she needed to be reintubated (put back on the ventilator). He said she was so close to falling off the cliff, and he hated to have her struggling for every breath. Her reintubation was not easy because she has an anterior airway and her energy reserves were low to begin. She spent 4 weeks off the ventilator doing so well with her nasal cannula and her O2 needs were low, so we just don't know why this is happening. She is doing better now that she is on the ventilator. We however have been pushed to the breaking point. I seriously don't know how much more we can handle. I personally feel like my heart is crumbling into a thousand pieces, this setback is so huge we just don't know when she will be coming home.
PLEASE PLEASE pray for Eden right now, she has a LONG road ahead of her. Also pray for us that we can depend on God 100% and that we won't completely breakdown.
Reagan is doing well, she is needing less O2 and she is growing a ton!
Omg i'm so sorry...i am praying for her and for your and your dh. ((((hugs))))
ReplyDeleteman this is the saddest news. We'll be praying for little Eden and the two of you as you work through this tough stage. Please let us know if we can do anything for you to help out.
ReplyDeletePraying for you and your family. I hope Eden turns around quickly!
ReplyDeleteHi! I just read some of your blog (coming from the Preemies board) and have tears in my eyes for you and your husband. You have been through so much, and your little ones have been fighting so hard. I am inspired by your faith,and am praying for your little angels. We've been through the NICU with 3 little ones (33wks, 31wks, and most recently, 27 wks), and I know how exhausting it is, and what a roller coaster it is. Just know that God is holding your little ones in his hands.
ReplyDeleteI am so sorry. Hang in there. Praying God gives you the strength to get through each day and little Eden gets stronger so she and sissy can come home.
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